I have had Complex Regional Pain Syndrome (CRPS) for almost 7 years. Through these years I have been posting to a private Facebook group related to this condition. I am going to share these posts here, and try and unpack what I was feeling at the time.
At the Rock and Roll Hall of Fame in Cleveland. So excited to be here 
I love music, I always have. I especially love singing. Just in case you think I’m a one dimensional person who is all about pain!
Originally posted 27 June 2018 I’ve just been approved for Pamidronate infusions, first one is next week. Has anyone else […]
Originally posted 6 November 2018 Weird question, but who else can I ask? Can you tell the difference between the […]
Originally posted 18 July 2018 Another story about CRPS in NZ media – https://www.stuff.co.nz/national/health/102490092/solo-mum-locked-in-battle-for-funds-to-care-for-daughter-battling-crpsÂ