I have had Complex Regional Pain Syndrome (CRPS) for almost 7 years. Through these years I have been posting to a private Facebook group related to this condition. I am going to share these posts here, and try and unpack what I was feeling at the time.
This is my last night in Park City, Utah. I spent the day in Salt Lake City. It’s been pretty hectic, with a side trip to Boston on Thursday and Friday, that had me rushing through too many airports to remember! Tomorrow, I’m going to Cleveland, and will be there until I leave for home on Wednesday. I can’t wait. I had some serious pain for the first couple of days, then it eased off, and today it’s back to semi-intrusive. Could be worse.
Originally posted 13 September 2018 Today I’m having my 3rd and last Pamidronate infusion. It feels like the first 2 […]
Originally posted 16 December 2018 This is infuriating! https://www.stuff.co.nz/national/health/107963931/the-8m-doctor-acc-pays-for-wholly-speculative-diagnosis-that-does-not-accord-with-the-clinical-facts-judge-says It’s all in your head One of the most frustrating aspects […]
Originally posted 23 October 2018 At the Rock and Roll Hall of Fame in Cleveland. So excited to be here […]