Originally posted 10 September 2021
Well, today was a rollercoaster. A while ago I registered interest in a clinical trial – Exsurgo – Axon for pain. They called me today, I was the first patient they called, and they wanted me in the trial. It was going to start with a delivery on Monday, first meeting on Tuesday to sign consent online, another delivery on Wednesday and then a training session on Thursday. All booked in and confirmed.
Then they found out that I have had seizures in the past, as I had / have epilepsy, and called me back 3 hours afterwards saying I couldn’t be in the trial. I was up front about the epilepsy in my registration of interest, but somehow they missed it.
Coming on top of several weeks with no breaks in the pain, just 100% full throttle all the time, I am just shattered. I’ve shed my tears, now just exhausted. Tomorrow I’ll think about what’s next.