Originally posted 28 March 2019
I know I’m being super noisy right now, but I have a question – my CRPS foot feels like it’s clenching a lot of the time, and when I notice it, I have to make an effort to relax it. Does this happen to anyone else? Is this dystonia? Can it start later than the rest of your CRPS symptoms?
CRPS is a progressive disorder
It took me a long time to fully understand this, but CRPS is a progressive disorder. It is not unusual to have new and different symptoms. The most important thing is to focus on slowing the progression as much as you can. I don’t have answers as to how you do that. My opinion is that continuing to live your life as normally as possible is probably important. Don’t stop doing things, don’t stop engaging with your life. Easier said than done, I know!
