The dreaded spread
Originally posted 29 July 2018 Feeling pretty low at the moment. I’m pretty sure my CRPS has spread to my…
I have had Complex Regional Pain Syndrome (CRPS) for almost 7 years. Through these years I have been posting to a private Facebook group related to this condition. I am going to share these posts here, and try and unpack what I was feeling at the time.
All the posts that I’ve posted to my private group in 2018
Originally posted 29 July 2018 Feeling pretty low at the moment. I’m pretty sure my CRPS has spread to my…
Originally posted 18 July 2018 Another story about CRPS in NZ media – https://www.stuff.co.nz/national/health/102490092/solo-mum-locked-in-battle-for-funds-to-care-for-daughter-battling-crps
Originally posted 11 July 2018 Eric, my beautiful ginger boy, playing along at pill time.
Originally posted 5 July 2018 Today is the day for my first Pamidronate infusion. I’m hopeful and scared. From what…
Originally posted 27 June 2018 I’ve just been approved for Pamidronate infusions, first one is next week. Has anyone else…
Originally posted 22 May 2018 I got a TENS machine today, something I didn’t even know existed up until last…
Originally posted 22 May 2018 Today I had more than 2 hours of no pain, just nothing at all. I’ve…
Originally posted 18 May 2018 Happy Friday everyone. Since I am relatively new to this condition, and visits to the…
Originally posted 14 May 2018 It’s been a really intense 4 days. My husband had shoulder surgery on Friday, my…